The doctor told me I had spots of cataracts already on my eyes. My retina looks like that of a 40 year old. Macular degeneration he called it. He asked if there was any history of albinism in my family and warned that my kids may be albino and even blind if I "choose the wrong match" - like I can control who I fall in love with. ("Stay away from the Norwegians").
So now, a couple of years into my thirties I have actually lost my vision. He once warned that I should wear good sunglasses at all times when outside, now I wear them like my skin. My beautiful blue-green eyes have been glazed over by cataracts and I cannot see more than through a heavily fogged window.
When once my art practice revolved around an obsession with color and a unique visual interest, now it consists of blind strokes and the records of my fingers tracing faces. Tragically I cannot use the tools on which I relied so heavily, almost exclusively. I used my eyes to see my art, to paint and draw, to write, read, and day dream, to learn dances and admire God's creation. Star gazing, God! I am near tears now as I think of all the things for which I once used my eyes.
They are so precious to me.
Like a dog losing its sense of smell, an ant without feelers, a cheetah without legs, a bat without ears.
Now I turn to singing. That talent I used only selfishly, timidly. I write songs about things I observed when I could see, the pleasure of seeing. I write about my family, ambitions, beliefs, and philosophies. The words I used to hide in the pages of my journals finally make it to a public forum. I don't know how to write music, or even to sing properly really, so I write and sing into a recording device. My partner helps write the music for others to read. I have a faithful band of musicians expressing themselves with me - alongside my frustration, anger, and still constant peace and joy.
Guitars, violins, drums, cellos, flutes, pipes, piano, organ, and instruments we find in the places we travel.
I have a personal trainer who helps me keep my body strong. [Wow, would I even care if I couldn't see myself in the mirror? Yes. Hell yes! Even more than before because all I would know is how I felt, how my clothes felt on me.]
Would I be afraid of the stage? How could I?
When I dance I throw myself into the music. I move the way the rhythms move me. The stage would have to be fenced off, enclosing me in a gentle cage. This way I would feel safe knowing I could move freely and not fall into the crowd or down the stairs or into the drums.
I would throw myself into my music because it would be all I had left.
I am frightened. I am warned.
But I'm excited, nearly eager.
How sick.